Tag Archives: million

Race against time for family of toddler with ultra-rare disease, whose only chance at life costs $3 million

When Michael Pirovolakis was born eight days before Christmas in 2017, his green eyes glowed bright like two snow globes. He had 10 fingers, 10 toes and a full head of hair matted to his head. Michael was a cooing, crying, healthy baby boy. “What else could we ask for,” said his father, Terry. Terry,… Read More »

The most expensive medicine ever treats a rare condition. The price: $2.13 million – Los Angeles Times

Evelyn Villarreal was one of the first children treated, at 8 weeks. Her family, from Centreville, Va., had lost their first child to spinal muscular atrophy at 15 months. Two years later when Evelyn was born a test showed she also had the disease, so the family enrolled her in the gene therapy study at… Read More »

Over 18 million Brits in ‘fat danger zone’ and twice as likely to get diabetes

Adults who are moderately overweight face a surprisingly high threat of suffering from a number of serious conditions. They face a 140% higher risk of Type 2 diabetes compared with a healthy weight, 28% for kidney issues and 15% for heart issues. The biggest ever study of UK obesity reveals the scale of the problem.… Read More »