Tag Archives: ultrarare

Race against time for family of toddler with ultra-rare disease, whose only chance at life costs $3 million

When Michael Pirovolakis was born eight days before Christmas in 2017, his green eyes glowed bright like two snow globes. He had 10 fingers, 10 toes and a full head of hair matted to his head. Michael was a cooing, crying, healthy baby boy. “What else could we ask for,” said his father, Terry. Terry,… Read More »